Embark on a unique culinary exploration with our Rare & Share Dinner, where every dish tells a story. Crafted by our chefs Azrin Rahman and Patrick Heuberger, this special 4-course dining experience offers a glimpse into the daily lives of individuals living with Spinal Muscular Atrophy (SMA).

Launching on Rare Disease Day, the 29th February 2024, the Rare & Share dinner menu will continue to delight diners every Wednesday evening throughout March 2024, specifically on the 6th, 13th, 20th, and 27th.

*Reservations are only open for dinner on Wednesdays, from
29 February to 27 March 2024

A Story of Strength

Chef Patrick Heuberger

Chef Azrin Rahman

The Exclusive Set Menu

About Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is a rare, progressive neuromuscular disease caused by a genetic mutation that impairs the survival of neurons vital for movement and motor function. It is characterised by gradual weakening and wasting  of muscles that impacts daily functions like walking, eating and breathing, resulting in some individuals needing round-the-clock care and support.1 

SMA most commonly affects infants but many older children and adults are also affected.1 There are 40 to 50 SMA patients in Singapore; more than 80% of those supported by MDAS are aged 16 years and older.2, 3 Although there is increasing awareness of SMA in Singapore, there is still opportunity to do more to address the difficulties encountered by older children and adult SMA patients. In addition, despite effective treatments and supportive care being available, they are often insufficiently covered by existing healthcare funding in Singapore.


1. Cleveland Clinic. Spinal Muscular Atrophy (SMA). Available at https://my.clevelandclinic.org/health/diseases/14505-spinal-muscular-atrophy-sma [Last accessed January 2024]

2. Singapore Ministry of Health. Notice paper 1804. Response to parliamentary question on Singaporeans diagnosed with spinal muscular atrophy and cost of treatment. 22 March 2023. Available at: https://www.moh.gov.sg/news-highlights/details/singaporeans-diagnosed-with-spinal-muscular-atrophy-and-cost-of-treatment. [Last accessed January 2024] 

3. Muscular Dystrophy Association (Singapore). Data on file. February 2024.